Description : The use of narrative methods has a long history in palliative care, pioneered by Dame Cicely Saunders, founder of the modern hospice movement, Narrative and Stories in Health Care provides a vibrant, multidisciplinary examination of work with narrative and stories in contemporary health and social care, with a focus on the care of people who are ill and dying. It animates the academic literature with provocative 'real-world' examples from international contributors, including palliative care service users and those working in the social and human sciences, medicine, theology, and the creative arts. Narrative and Stories in Health Care addresses and clarifies core issues: What is a narrative? What is a story? What are some of the main methods and models that can be used and for what purposes? What practical and ethical dilemmas can the methods entail in work with illness, death and dying? As well as highlighting the power of stories to create new possibilities, the book also acknowledges the conceptual, methodological and ethnical problems and challenges inherent in narrative work. As the hospice and palliative care movement evolves to meet the challenges of 21st century health care, this fascinating book highlights how narratives and stories can be attended to in ways that are productive, ethical, and caring.
Description : Narrative medicine has developed an identity already. Clinicians of many disciplines are being summoned to a practice that recognizes patients by receiving their accounts of self. Starting from different positions, the four authors have converged in a strong and shared commitment to narrative health care. They conceptualize narrative health care practices within frameworks derived from the social sciences and psychology, and, to a lesser degree, phenomenology and autobiographical theory. They relate the development of narrative medicine to relationship-centered care, patient-centered care, and complex responsive process of relating theory, positing that narrative medicine can help clinicians to develop the skills required to practice relationship-centered care. The book details - with exercises, resource texts, and abundant scholarly apparatus - how these skills can be developed and strengthened. This work will change health care. Because of its scholarly rigor, its multi-voiced sources, and its highly practical features (lists, activities, key ideas and key references, primary texts written by health care professionals and patients), this work will be a guide in the field for those who practice medicine or nursing or social work. The book establishes that there is a field to be practised, a need to practise it, and a means to develop the wherewithal to do so.
Description : Throughout our lives, story is the medium each of us uses to make sense of our environment and relationships. Stories provide meaning and context, enriching our experiences and equipping us with a framework to navigate our existence. Storytelling in Medicine is aunique, practical book for healthcare trainees, practitioners and educators that explores the ideas and practice of narrative and storytelling that lie at the very heart of clinical medicine and the patient ‘experience’ of care. It shows how story and narrative can be used effectively to help convey concepts such as prognosis and the effect of illness upon life, and to prepare patients and their relatives for difficult and painful news. Offering a particular insight into communication by and between healthcare professionals, and how it can be refocused and improved, the book is an invaluable teaching aid for educators working in both small and large formats, and for under- and postgraduate students.
Description : Narrative medicine emerged in response to a commodified health care system that places corporate and bureaucratic concerns over the needs of the patient. This book provides an introduction to the principles of narrative medicine and guidance for implementing narrative methods.
Description : What is it like to live with an illness? How do diagnostic procedures, treatments, and other encounters with medical institutions affect a patient's private and social life? By asking these types of questions, illness narratives have gained a reputation as a scientific domain in medicine in the last thirty years. Today, a patient's story plays an important role in doctor-patient communication and the development of a healing relationship. However, whereas patient experiences have been well acknowledged, methodologically reflected upon and widely collected as research data, less consideration has been invested in exploring how they work in practice. Used in the context of diagnosis, treatment, and teaching, patient stories give us a new perspective on how healthcare could be improved. Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts highlights the problems, challenges, and opportunities we face when using patient perspectives in practice and research in a clear format to provide readers with a comprehensive overview of this field. It investigates the epistemological foundations and communicational properties of illness narratives, as well as the pragmatic effects of using them as clinical and educational instruments. Significantly, it presents new examples from patient intakes and interviews that illustrate the disparity in communication between patients and medical professionals. The studies in this book also evaluate the experiences of medical practitioners and students who consciously use patient narratives as a tool for improved communication and diagnosis. Divided into eight sections with practical examples for medical teaching and practice, this book covers the use of patient narratives in communication training and decision making across medicine and psychotherapy. In addition, it reflects on the ethical aspects of working with a patient's personal experience of their illness, reports on cultural differences across the globe, and analyses how patients' stories are used in politics and the media. Written by scholars from multiple disciplines across clinical and theoretical fields, this rich resource provides a critical stance on the use of narratives in medical research, education, and practice.
Description : Our personalities and our identities are intimately bound up with the stories that we tell to organize and to make sense of our lives. To understand the human meaning of illness, we therefore must turn to the stories we tell about illness, suffering, and medical care. Stories of Sickness explores the many dimensions of what illness means to the sufferers and to those around them, drawing on depictions of illness in great works of literature and in nonfiction accounts. The exploration is primarily philosophical but incorporates approaches from literature and from the medical social sciences. When it was first published in 1987, Stories of Sickness helped to inaugurate a renewed interest in the importance of narrative studies in health care. For the Second Edition the text has been thoroughly revised and significantly expanded. Four almost entirely new chapters have been added on the nature, complexities, and rigor of narrative ethics and how it is carried out. There is also an additional chapter on maladaptive ways of being sick that deals in greater depth with disability issues. Health care professionals, students of medicine and bioethics, and ordinary people coping with illness, no less than scholars in the health care humanities and social sciences, will find much value in this volume. Unique Features: *Philosophically sophisticated yet clearly written and easily accessible *Interdisciplinary approach--combines philosophy, literature, health care, social sciences *Contains many fascinating stories and vignettes of illness drawn from both fiction and nonfiction *A new and comprehensive overview of the "hot topic" of narrative ethics in medicine and health care
Description : Dignity is fundamental to every single person’s life and history; and every interaction with another human being can potentially influence a person’s sense of identity and self-esteem. In recent years, there has been a growing awareness of the importance of ‘dignity in care’. When healthcare organisations and individuals prioritise dignity, service users, carers and staff are treated with respect, compassion and understanding, and safe, good-quality healthcare services are delivered. In contrast, when dignity and respect are neglected or violated, people experience poor-quality care and may even suffer neglect and abuse. For all these reasons, it is clearly vital that all healthcare workers have a thorough understanding of dignity and how to place it at the centre of all their activities. In this helpful and thought-provoking book, the contributors offer an overview of current research on dignity-preserving care, highlighting practical and ethical considerations in various healthcare settings. Section I introduces some key dignity theories, demonstrating how the use of narrative can offer insight and practical solutions for the delivery of high-quality care. Section II introduces actual stories from diverse settings and perspectives, enabling the reader to engage with core elements of dignity while highlighting how dignity can be preserved – even in very challenging practice situations. Critical thinking activities are also provided to encourage deep reflection and learning. This book will support students of nursing and allied healthcare professions, as well as healthcare professionals working in diverse practice settings, to reflect upon and enhance the quality of their care. Contents include: • Foreword: old and new philosophical angles on dignity in care • Preface: the necessity of dignity in healthcare • Understanding dignity: a complex concept at the heart of healthcare • Dignity and narrative: moral intuitions and contested claims • Dignity in dementia care • Dignity, protected by caring in care • Storytelling as a dignity-preserving practice in palliative care • Reintegrating spirituality and dignity in nursing and healthcare: a relational model of practice • The service provider and care perspective • Let us not forget the dignity of the professional caregiver: the necessity of dignity preservation within the therapeutic context • Dignity in suffering: a theological perspective • Learning dignity by involvement • Dignity in cancer care: a discussion based on three narratives written by nurses • A story of facilitators’ experiences of the Excellence in Practice Accreditation Scheme and its influence on quality, dignity and respect • Afterword: what gets in the way of dignity, and why you must not let it
Description : "This book explores various individual user-driven strategies that assist in solving multiple clinical system problems in healthcare, using social networking to improve their healthcare outcomes"--Provided by publisher.
Description : Seeks to restore the pivotal role of the patient’s own story in the healing process • Shows how conventional medicine tends to ignore the account of the patient • Presents case histories where disease is addressed and healed through the narrative process • Proposes a reinvention of medicine to include the indigenous healing methods that for thousands of years have drawn their effectiveness from telling and listening Modern medicine, with its high-tech and managed-care approach, has eliminated much of what constitutes the art of healing: those elements of doctoring that go beyond the medications prescribed. The typically brief office visit leaves little time for doctors to listen to their patients, though it is in these narratives that disease is both revealed and perpetuated--and can be released and treated. Lewis Mehl-Madrona’s Narrative Medicine examines the foundations of the indigenous use of story as a healing modality. Citing numerous case histories that demonstrate the profound power of narrative in healing, the author shows how when we learn to dialogue with disease, we come to understand the power of the “story” we tell about our illness and our possibilities for better health. He shows how this approach also includes examining our relationships to our extended community to find any underlying disharmony that may need healing. Mehl-Madrona points the way to a new model of medicine--a health care system that draws its effectiveness from listening to the healing wisdom of the past and also to the present-day voices of its patients.
Description : Narrative medicine is a fresh discipline of health care that helps patients and health professionals to tell and listen to the complex and unique stories of illness. The Principles and Practice of Narrative Medicine expresses the collective experience and discoveries of the originators of the field. Arising at Columbia University in 2000 from roots in the humanities and patient-centered care, narrative medicine draws patients, doctors, nurses, therapists, and health activists together to re-imagine a health care based on trust and trustworthiness, humility, and mutual recognition. Over a decade of education and research has crystallized the goals and methods of narrative medicine, leading to increasingly powerful means to improve the care that patients receive. The methods described in this book harness creativity and insight to help the professionals in being with patients, not just to diagnose and treat them but to bear witness to what they undergo. Narrative medicine training in literary theory, philosophy, narrative ethics, and the creative arts increases clinicians' capacity to perceive the turmoil and suffering borne by patients and to help them to cohere or endure the chaos of illness. Narrative medicine has achieved an international reputation and reach. Many health care settings adopt methods of narrative medicine in teaching and practice. Through the Master of Science in Narrative Medicine graduate program and health professions school curricula at Columbia University, more and more clinicians and scholars have obtained the rigorous training necessary to practice and teach narrative medicine. This text is offered to all who seek the opportunity for disciplined training in narrative medicine. By clearly articulating our principles and practice, this book provides the standards of the field for those who want to join us in seeking authenticity, recognition, affiliation, and justice in a narrative health care.